National Organization for Rare Disorders (NORD) — RareCare

Patient assistance programs

Find medicine and test assistance programs, enrollment teams and financial-support contacts. Manufacturer programs, lab assistance and independent grants have different eligibility rules.

patient assistance

NORD RareCare — Patient Services Representative

Official page read
Phone203-616-4328Published hours

Not published in this record

Product, plan and location

Confirm the exact product or service
National contact — confirm product and location

Mailing address

Not researched for this route

RareCare programs provide medication, premium/copay, diagnostic-testing and travel assistance for specific rare diagnoses. Many disease programs have their own published phone numbers on the program search; call this general line to learn what is available. The published email is obfuscated and omitted.

Wait time: not establishedBest time from caller reports: not established. Published hours are not a wait forecast.

patient assistance

NORD Support Helpline

Official page read
Phone800-999-6673Published hours

Monday–Thursday 8:30am–7:00pm ET; Friday 8:30am–6:00pm ET

Product, plan and location

Confirm the exact product or service
National contact — confirm product and location

Mailing address

Not researched for this route

General rare-disease information, specialist and resource navigation. Not the RareCare grant line.

Wait time: not establishedBest time from caller reports: not established. Published hours are not a wait forecast.

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Call preparation · editorial guide

Make the call count.

Find medicine and test assistance programs, enrollment teams and financial-support contacts. Manufacturer programs, lab assistance and independent grants have different eligibility rules.

Have ready in your secure workspace

  • Exact medicine or test name and program
  • Current application or billing reference, kept privately
  • Insurance category and the program’s current required forms

Questions to resolve

  • Does this program support this exact medicine or test?
  • Which eligibility requirements and enrollment documents apply?
  • Where should the application go, and how can receipt be confirmed?

This is a general administrative checklist, not payer policy or advice about a particular patient. Confirm the current plan instructions.

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